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With her filmmaker and novelist husband Simon confined to a wheelchair, and communicating solely through eye movement

The Fitzmaurice clan…
inding peace of mind isn’t always easy, especially in a busy house, but Greystones resident Ruth Fitzmaurice writes beautifully today in The Irish Times about her own private Idaho.
And, as for so many people around here – and quite a few dogs – it’s down in The Cove.
With her filmmaker and novelist husband Simon confined to a wheelchair, and communicating solely through eye movement
technology, the everyday hustle and bustle of bringing up five kids is a little more complicated in the Fitzmaurice household. The nurses and carers are there to do an important job, but each is just passing through, like relatives popping by for Christmas dinner. Every, single. day.
Thankfully, Ruth has found a way to make it all work. And, given that Ruth is a novelist, she’s also found a way of putting it all down in words. Magnificently…
Three-year-old Sadie says that Dadda talks with his eyes. An eye-gaze computer sounds less romantic. “I’ll ask his eyes,” she says when she wants something. “He loves me!” she exclaims like a surprise present. Love like a present is the gift we share from him. I hold it fiercely. His magnificent heart.
My husband is a wonder to me but he is hard to find. I search for him in our home. He breathes through a pipe in his throat. He feels everything but cannot move a muscle. I lie on his chest counting mechanical breaths. I hold his hand but he doesn’t hold back. His darting eyes are the only windows left. I won’t stop searching. My soul demands it and so does his. Simon has motor neuron disease, but that’s not the dilemma, at least not today. Be brave.
I am sitting in my car in Wicklow town, looking out on the harbour. I’m watching these yacht masts dancing. Their heads are swaying to and fro, warbling with Joni Mitchell on the radio.
Wicklow harbour is nice. It’s vast and full of blue. It has a higher, wider reach than the Greystones view. I can’t breathe in Greystones right now, so this is good. Maybe Greystones is like all great loves. You either marvel at every familiar dancing step and soak it into your bones or, like today, the familiar edges trip you up and annoy the shit out of you. Too claustrophobic, a rat in a cage, a lift with no panic button.
Here’s the dilemma. My house is full of strangers. I have painted it bright colours and surrounded it with love, but strangers step through it at an alarming rate. Well- meaning Muhammads make tea. So many Helens and Marys and Jackies and Michaels and Deirdres and Claires and Sams and Franks and Graces smile and leave mops in weird places. I sidestep them in the hall and at the dishwasher. Our house is filled with nurses and carers and they are hurting me. It’s not their fault.
Some stay a while, but most are passing through. Some stay a while. I grow to love them and then they break my heart and leave anyway. It’s nobody’s fault. This is agency work. Some wear overbearing perfume. It attacks olfactory emotions I didn’t even know I had. I feel irrational hatred towards them because they make my house smell like them. Most of them smoke but I don’t mind the smell of that. At least it’s a universal smell, like fire or Fairy Liquid or Persil Automatic or petrol. A lot of them try and turn our home into a hospital, and I fight like a tiger against that and bare pointy teeth.
They all leave eventually, except for Marian. Marian believes in angels and blood moons. She lives purely through her emotions, and a good day always starts with this night nurse and a sleepy, chatty cup of tea. I wish I believed in angels. We drink tea together on dark mornings. Marian believes everything happens for a reason and that people have colours and swirly energies around them, positive or negative.
If you hang out with her for long enough, you could be laughing or crying or both and you can almost see a pencil outline on the walls of angel wings in the shadows. She is, of course, my angel. “I’m not going anywhere,” she said to me once. “I’m here for you.” I look into her eyes and I believe her.

Supermoon Over Greystones Vlad Bodarev
inding peace of mind isn’t always easy, especially in a busy house, but Greystones resident Ruth Fitzmaurice writes beautifully today in
And, as for so many people around here – and quite a few dogs – it’s down in The Cove.
technology, the everyday hustle and bustle of bringing up five kids is a little more complicated in the Fitzmaurice household. The nurses and carers are there to do an important job, but each is just passing through, like relatives popping by for Christmas dinner. Every, single. day.

Here’s the dilemma. My house is full of strangers. I have painted it bright colours and surrounded it with love, but strangers step through it at an alarming rate. Well- meaning Muhammads make tea. So many Helens and Marys and Jackies and Michaels and Deirdres and Claires and Sams and Franks and Graces smile and leave mops in weird places. I sidestep them in the hall and at the dishwasher. Our house is filled with nurses and carers and they are hurting me. It’s not their fault.
Some stay a while, but most are passing through. Some stay a while. I grow to love them and then they break my heart and leave anyway. It’s nobody’s fault. This is agency work. Some wear overbearing perfume. It attacks olfactory emotions I didn’t even know I had. I feel irrational hatred towards them because they make my house smell like them. Most of them smoke but I don’t mind the smell of that. At least it’s a universal smell, like fire or Fairy Liquid or Persil Automatic or petrol. A lot of them try and turn our home into a hospital, and I fight like a tiger against that and bare pointy teeth.




We have love in the nucleus of our family, but where do you put roots down with that love? An affordable bigger house in the countryside, or a commutable distant town? Or stay where you know people, in a smaller house bursting at the seams? My friend’s calm cousin cuts through the bullshit. “Find your tribe,” she says. Finding your people is more important than what kind of house you live in. Decide whether you’ve found your tribe and go from there. I believe her.
On other days I need to weep. When your body breaks down in a parked car, it is embarrassing. A man walked by on the footpath at the precise moment my face crumbled, and I turned away sharply. Oh, the shame. The horror that someone should witness this pain in the safe routine of the school run.
On this day I can’t escape the feeling of being robbed in a ransacked house full of strangers. I cry for all the things we have lost, my husband and I, for the pain of lost things in a ransacked house. I thought of stepping out of the car in the rain. Step out and walk in the rain to the sea, to the steps down to the cove. To just step into the waters and struggle in my winter jacket and not come back up.
“No, I think they’re just American,” she said honestly, and we both got a fit of the giggles. They had rolled up from the YMCA. A 
